You down with HPP?
Our son, Leo, was diagnosed with a rare blood disorder called hereditary pyropoikilocytosis (HPP) which makes his red blood cells more fragile and leads to anemia. At only 3 months old, he’s had to have numerous blood draws, phototherapy and 3 blood transfusions to keep him stable. It will be a long road ahead for him, especially this first year, but he is a fighter!
Leo has been receiving his medical care at the Valerie Center in Morristown. We are so fortunate to have this resource so close to home. Everyone from the administrative staff to the medical professionals have been so kind and supportive during this very scary time in our lives. They are a great team, and Leo is receiving excellent care in their hands.
We are walking to raise money for the Valerie Fund, which supports the Valerie Center in Morristown along with several other centers throughout NJ. They set up these facilities so that children with cancer and blood disorders can receive the care they need close to home. Come out and join Leo’s League! We look forward to seeing everyone in June!